In the last couple of days we received news that the letters we wrote to the families of the organ recipients were never delivered. Because the donations went to different states the chain of communication is long. There are privacy rules in place.
Long story short there was a breakdown in the chain and because of a language barrier between us and the recipient families. The letters were never received.
What we know so far is that the children who received Penny's liver and heart are doing well. Both parents were excited to hear that we had written to them. They should be getting our messages to them in the next day or so.
I got the full update yesterday at work. After a few minutes it sunk in. And I broke down. I was excited to know that the children are well but it was a reminder that Penny is not with us. Bittersweet doesn't begin to explain. Hope to one day meet the families. But realize it will be more difficult that I thought.
We are so grateful for our representative at the NJ Sharing Network. She has been tireless in tracking down the right contacts at the recipient angencies. And following up with us.
This Monday she would have be 10 months old...
Erik
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